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Table 3 Responses to the questionnaire at both admission and discharge

From: A pilot survey on the quality of life in respiratory rehabilitation carried out in COPD patients with severe respiratory failure: preliminary data of a novel Inpatient Respiratory Rehabilitation Questionnaire (IRRQ)

Item Admission Discharge
   Mode (%) Omissions n (%) Mode (%) Omissions n (%)
Section 1: What symptoms have you got?     
1 I’ve had cough (with or without phlegm) “Often” (26.5) 0 “Sometimes” (29.4) 0
2 I’ve been out of breath when I wake up in the morning “Often” (32.4) 1 (2.9) “Sometimes” / ”Never” (29.4) 0
3 I’ve been out of breath while resting “Never” (35.3) 1 (2.9) “Never” (47.1) 1 (2.9)
4 I’ve been out of breath while dressing, combing my hair, washing myself… “Always” (38.2) 0 “Sometimes” (32.4) 0
5 I’ve been out of breath while walking uphill, while climbing stairs… “Always” (52.9) 1 (2.9) “Always” (35.3) 0
6 Because of my respiratory problems I have called my doctor “Often” (32.4) 1 (2.9) “Never” (42.4) 1 (2.9)
7 Cough or shortness of breath have disrupted my sleep “Often” (32.4) 0 “Rarely” (35.3) 0
8 I have felt drowsy during the day “Sometimes” / “Never” (32.4) 1 (2.9) “Never” (29.4) 0
Section 2: How do you live?     
1 I’ve have difficulty doing anything at home (reading a book, receiving friends, listening to music…) “Often” (41.2) 0 “Never” (38.2) 0
2 I have difficulty leaving the house to go shopping, go out with friends, pursue a hobby… “Always” (38.2) 1 (2.9) “Sometimes” (35.3) 0
3 Because of my respiratory disorder(s) I have felt like an invalid “Often” / “Always” (32.4) 1 (2.9) “Sometimes” (41.2) 0
4 My respiratorydisorder(s) have limited me in what I eat “Never” (32.4) 0 “Never” (47.1) 0
5 My respiratory disorder(s) limit(s) my work activities “Often” (38.2) 2 (5.9) “Always” (29.4) 1 (2.9)
6 My respiratory disorder(s) limit(s) my sexual activity “Often” (32,4) 4 (11.8) “Always” (20.6) 5 (14.7)
7 My family helps me deal with my respiratory problems “Always” (52.9) 1 (2.9) “Always” (38.2) 1 (2.9)
8 The people around me help me deal with my respiratory problems “Sometimes” (29.4) 0 “spesso” (38.2) 1 (2.9)
9 My family hinders me/oppresses me “Never” (64.7) 1 (2.9) “Never” (67.6) 0
10 The people around me hinder me/oppress me “Never” (52.9) 2 (5.9) “Never” (64.7) 0
Section 3: My mood     
1 I have felt sad “Often” (41.2) 0 “Sometimes” / ”Never” (29.4) 1 (2.9)
2 I have cried without reason “Sometimes” (32.4) 0 “Never” (67.6) 0
3 I have lost interest in doing the things I used to at home “Often” (35.3) 2 (5.9) “Never” (50.0) 2 (5.9)
4 I have lost interest in doing the things I used to outside home “Often” (32.4) 1 (2.9) “Never” (44.1) 2 (5.9)
5 I have lost interest in food “Sometimes” (26.5) 0 “Never” (58.8) 1 (2.9)
6 I have trouble falling asleep “Often” (26.5) 2 (5.9) “Sometimes” (29.4) 1 (2.9)
7 I sleep fitfully “Sometimes” (47.1) 0 “Sometimes” (35.3) 0
8 I feel tired and without energy “Often” (35.3) 1 (2.9) “Sometimes” (38.2) 0
9 I have been dissatisfied with myself, in what I do and how I behave “Never” (26.5) 0 “Rarely” (32.4) 0
10 I have had difficulty concentrating, thinking, making decisions “Never” (44.1) 1 (2.9) “Never” (41.2) 1 (2.9)
11 I have wished I could die “Never” (44.1) 0 “Never” (64.7) 0
Section 4: How important is this to you?     
1 At admission: Doing work around the house; at discharge: Reading “Very important” (32.4) 0 “Important” (32.4) 1 (2.9)
2 Going out (going shopping, going out with friends, pursuing a hobby…) “Very important” (38.2) 0 “Very important” (29.4) 1 (2.9)
3 My work activities “Not important at all” (32.4) 2 (5.9) “Very important” (29.4) 3 (8.8)
4 My sexual activity “Not important at all” (29.4) 2 (5.9) “Important” (35.3) 2 (5.9)
5 The support from my family “Very important” (64.7) 1 (2.9) “Very important” (64.7) 1 (2.9)
6 The support from people around me “Very important” (50.0) 1 (2.9) “Very important” (58.8) 0
7 The food I eat “Very important” (38.2) 0 “Very important” (38.2) 0
8 My body image (being too thin or too fat) “Very important” (35.3) 0 “Very important” (29.4) 1 (2.9)
9 Coughing “Very important” (47.1) 2 (5.9) “Very important” / ”Important” (32.4) 1 (2.9)
10 Shortness of breath in the morning “Very important” (50.0) 3 (8.8) “Very important” (29.4) 5 (14.7)
11 Shortness of breath while resting “Very important” (38.2) 4 (11.8) “Very important” / “Not important at all” (20.6) 3 (8.8)
12 Shortness of breath while walking uphill or climbing stairs… “Very important” (64.7) 2 (5.9) “Very important” (50.0) 1 (2.9)
13 Not being able to sleep because of shortness of breath “Very important” (38.2) 3 (8.8) “Very important” (26.5) 5 (14.7)
14 Being drowsy during the day “Of little importance” (32.4) 4 (11.8) “Not important at all” (29.4) 2 (5.9)
Section 5: What do I think of the treatment I am having?     
1 It bothers me to take medicine in front of others “False” (67.6) 0 “False” (82.4) 1 (2.9)