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Table 3 Responses to the questionnaire at both admission and discharge

From: A pilot survey on the quality of life in respiratory rehabilitation carried out in COPD patients with severe respiratory failure: preliminary data of a novel Inpatient Respiratory Rehabilitation Questionnaire (IRRQ)

Item

Admission

Discharge

  

Mode (%)

Omissions n (%)

Mode (%)

Omissions n (%)

Section 1: What symptoms have you got?

    

1 I’ve had cough (with or without phlegm)

“Often” (26.5)

0

“Sometimes” (29.4)

0

2 I’ve been out of breath when I wake up in the morning

“Often” (32.4)

1 (2.9)

“Sometimes” / ”Never” (29.4)

0

3 I’ve been out of breath while resting

“Never” (35.3)

1 (2.9)

“Never” (47.1)

1 (2.9)

4 I’ve been out of breath while dressing, combing my hair, washing myself…

“Always” (38.2)

0

“Sometimes” (32.4)

0

5 I’ve been out of breath while walking uphill, while climbing stairs…

“Always” (52.9)

1 (2.9)

“Always” (35.3)

0

6 Because of my respiratory problems I have called my doctor

“Often” (32.4)

1 (2.9)

“Never” (42.4)

1 (2.9)

7 Cough or shortness of breath have disrupted my sleep

“Often” (32.4)

0

“Rarely” (35.3)

0

8 I have felt drowsy during the day

“Sometimes” / “Never” (32.4)

1 (2.9)

“Never” (29.4)

0

Section 2: How do you live?

    

1 I’ve have difficulty doing anything at home (reading a book, receiving friends, listening to music…)

“Often” (41.2)

0

“Never” (38.2)

0

2 I have difficulty leaving the house to go shopping, go out with friends, pursue a hobby…

“Always” (38.2)

1 (2.9)

“Sometimes” (35.3)

0

3 Because of my respiratory disorder(s) I have felt like an invalid

“Often” / “Always” (32.4)

1 (2.9)

“Sometimes” (41.2)

0

4 My respiratorydisorder(s) have limited me in what I eat

“Never” (32.4)

0

“Never” (47.1)

0

5 My respiratory disorder(s) limit(s) my work activities

“Often” (38.2)

2 (5.9)

“Always” (29.4)

1 (2.9)

6 My respiratory disorder(s) limit(s) my sexual activity

“Often” (32,4)

4 (11.8)

“Always” (20.6)

5 (14.7)

7 My family helps me deal with my respiratory problems

“Always” (52.9)

1 (2.9)

“Always” (38.2)

1 (2.9)

8 The people around me help me deal with my respiratory problems

“Sometimes” (29.4)

0

“spesso” (38.2)

1 (2.9)

9 My family hinders me/oppresses me

“Never” (64.7)

1 (2.9)

“Never” (67.6)

0

10 The people around me hinder me/oppress me

“Never” (52.9)

2 (5.9)

“Never” (64.7)

0

Section 3: My mood

    

1 I have felt sad

“Often” (41.2)

0

“Sometimes” / ”Never” (29.4)

1 (2.9)

2 I have cried without reason

“Sometimes” (32.4)

0

“Never” (67.6)

0

3 I have lost interest in doing the things I used to at home

“Often” (35.3)

2 (5.9)

“Never” (50.0)

2 (5.9)

4 I have lost interest in doing the things I used to outside home

“Often” (32.4)

1 (2.9)

“Never” (44.1)

2 (5.9)

5 I have lost interest in food

“Sometimes” (26.5)

0

“Never” (58.8)

1 (2.9)

6 I have trouble falling asleep

“Often” (26.5)

2 (5.9)

“Sometimes” (29.4)

1 (2.9)

7 I sleep fitfully

“Sometimes” (47.1)

0

“Sometimes” (35.3)

0

8 I feel tired and without energy

“Often” (35.3)

1 (2.9)

“Sometimes” (38.2)

0

9 I have been dissatisfied with myself, in what I do and how I behave

“Never” (26.5)

0

“Rarely” (32.4)

0

10 I have had difficulty concentrating, thinking, making decisions

“Never” (44.1)

1 (2.9)

“Never” (41.2)

1 (2.9)

11 I have wished I could die

“Never” (44.1)

0

“Never” (64.7)

0

Section 4: How important is this to you?

    

1 At admission: Doing work around the house; at discharge: Reading

“Very important” (32.4)

0

“Important” (32.4)

1 (2.9)

2 Going out (going shopping, going out with friends, pursuing a hobby…)

“Very important” (38.2)

0

“Very important” (29.4)

1 (2.9)

3 My work activities

“Not important at all” (32.4)

2 (5.9)

“Very important” (29.4)

3 (8.8)

4 My sexual activity

“Not important at all” (29.4)

2 (5.9)

“Important” (35.3)

2 (5.9)

5 The support from my family

“Very important” (64.7)

1 (2.9)

“Very important” (64.7)

1 (2.9)

6 The support from people around me

“Very important” (50.0)

1 (2.9)

“Very important” (58.8)

0

7 The food I eat

“Very important” (38.2)

0

“Very important” (38.2)

0

8 My body image (being too thin or too fat)

“Very important” (35.3)

0

“Very important” (29.4)

1 (2.9)

9 Coughing

“Very important” (47.1)

2 (5.9)

“Very important” / ”Important” (32.4)

1 (2.9)

10 Shortness of breath in the morning

“Very important” (50.0)

3 (8.8)

“Very important” (29.4)

5 (14.7)

11 Shortness of breath while resting

“Very important” (38.2)

4 (11.8)

“Very important” / “Not important at all” (20.6)

3 (8.8)

12 Shortness of breath while walking uphill or climbing stairs…

“Very important” (64.7)

2 (5.9)

“Very important” (50.0)

1 (2.9)

13 Not being able to sleep because of shortness of breath

“Very important” (38.2)

3 (8.8)

“Very important” (26.5)

5 (14.7)

14 Being drowsy during the day

“Of little importance” (32.4)

4 (11.8)

“Not important at all” (29.4)

2 (5.9)

Section 5: What do I think of the treatment I am having?

    

1 It bothers me to take medicine in front of others

“False” (67.6)

0

“False” (82.4)

1 (2.9)